DiabetesFrail is committed to following Good Clinical Practice guidelines in all areas of its research, including data protection. We are in compliance with all relevant aspects of the General Data Protection Regulation legislation as set out below.
As a not-for-profit organisation carrying out clinical research projects, we do everything we can to anonymise data within our trials but do also use personally-identifiable information to conduct research with the aim of improving health and care. This means that we will use data taken from consenting participants in the ways needed to conduct and analyse the research study. The rights of participants to access, change or move their data will comply with the information given to them in their relevant Participant Information Sheets, to which they gave their consent. This means that if you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection and Compliance Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO).
Our Data Protection and Compliance Officer is Caroline Sinclair and you can contact them at firstname.lastname@example.org